Web Access Research Portal

Researcher: McWhirter, R (Dr Rebekah McWhirter)

Fields of Research

Medical and health law
Cancer genetics
Public law
Cardiology (incl. cardiovascular diseases)
Law and society and socio-legal research
Australian history
Gene mapping
Causes and prevention of crime
Property law (excl. intellectual property law)
Medical ethics
Tort law
Law, science and technology
Health services and systems
Aboriginal and Torres Strait Islander public health and wellbeing
Clinical midwifery
Privacy and data rights
Health promotion
Cancer diagnosis
Preventative health care
Applied ethics
Natural language processing
Health informatics and information systems
Software engineering

Research Objectives

Law reform
Clinical health
Other health
Aboriginal and Torres Strait Islander health system performance
Expanding knowledge in history, heritage and archaeology
Justice and the law
Expanding knowledge in law and legal studies
Aboriginal and Torres Strait Islander determinants of health
Expanding knowledge in the health sciences
Allied health therapies (excl. mental health services)
Criminal justice
Crime prevention
Other culture and society
Expanding knowledge in human society
Understanding Australia's past
Behaviour and health
Expanding knowledge in the biological sciences
Civil justice
Evaluation of health and support services
Prevention of human diseases and conditions
Aboriginal and Torres Strait Islander health status and outcomes
Legislation, civil and criminal codes
Health related to ageing
Public health (excl. specific population health)
Other law, politics and community services
Aboriginal and Torres Strait Islander education
Diagnosis of human diseases and conditions
Other Indigenous
Disability and functional capacity
Application software packages

Career Best Publications

Research Publications

'Lymph or Liberty': Responses to Smallpox Vaccination in the Eastern Australian Colonies
A scenario-based methodology for analyzing the ethical, legal, and social issues in genomic data sharing; Journal of Empirical Research on Human Research Ethics
Adjusting for Familial Relatedness in the Analysis of GWAS Data; Methods in Molecular Biology: Bioinformatics - Volume II: Structure, Function, and Applications.
All in the blood: a review of Aboriginal Australians’ cultural beliefs about blood and implications for biospecimen research; Journal of Empirical Research on Human Research Ethics
Australia: regulating genomic data sharing to promote public trust; Human Genetics
Body ownership and research; Journal of Law and Medicine
Community Engagement for Big Epidemiology: Deliberative Democracy as a Tool; Journal of Personalized Medicine
Disclosure of genetic results to at-risk relatives without consent: issues for health care professionals in Australia; Journal of Law and Medicine
Enhancing early detection of cognitive impairment in the criminal justice system: feasibility of a proposed method; Current Issues in Criminal Justice
Equitable expanded carrier screening needs Indigenous clinical and population genomic data; American Journal of Human Genetics
Essentially Ours: Assessing the Regulation of the Collection and Use of Health-related Genomic Information; University of Tasmania
Ethical genetic research in Indigenous communities: challenges and successful approaches; Trends in Molecular Medicine
Evidence for a common genetic aetiology in high-risk families with multiple haematological malignancy subtypes ; British Journal of Haematology
General practitioner perceptions of assessment and reporting of absolute cardiovascular disease risk via pathology services: a qualitative study; Family Practice
General practitioners maintain a focus on blood pressure management rather than absolute cardiovascular disease risk management; Journal of Evaluation in Clinical Practice
Genetic and epigenetic variation in vulvar cancer: Current research and future clinical practice; The Australian and New Zealand Journal of Obstetrics and Gynaecology
Genetic and lifestyle risk factors for MRI-defined brain infarcts in a population-based setting; Neurology
Genomics in research and health care with Aboriginal and Torres Strait Islander peoples; Monash Bioethics Review
How do we 'do' consent?
Identifying public expectations of genetic biobanks; Public Understanding of Science
Implementing values-based governance for a new bioresource model; Journal of Law and the Biosciences
Impressions on the Body, Property and Research; Persons, Parts and Property: How Should We Regulate Human Tissue in the 21st Century?
Informed consent and performance data: clinician experience as a material risk; University of New South Wales Law Journal
Integration of absolute cardiovascular disease risk assessment into routine blood cholesterol testing at pathology services; Family Practice
Key challenges in bringing CRISPR-mediated somatic cell therapy into the clinic; Genome Medicine
Moving forward on consent practices in Australia; Journal of Bioethical Inquiry: an interdisciplinary forum for ethical and legal debate
New avenues within community engagement: addressing the ingenuity gap in our approach to health research and future provision of health care; Journal of Responsible Innovation
Novel genetic loci underlying human intracranial volume identified through genome-wide association; Nature Neuroscience
Performance data and informed consent: a duty to disclose?; Medical Journal of Australia
Precision medicine: drowning in a regulatory soup?; Journal of Law and the Biosciences
Provenance and risk in transfer of biological materials; PLOS Biology
Recurrence patterns identify aggressive form of human papillomavirus-dependent vulvar cancer; Australian and New Zealand Journal of Obstetrics and Gynaecology
Regulation of Genetic Testing; Health Law in Australia
Regulation of non-consensual genetic testing in Australia: use of samples from deceased persons; Journal of Law and Medicine
Regulation of unregistered birth workers in Australia: Homebirth and public safety; Women and Birth
Runs of homozygosity and a cluster of vulvar cancer in young Australian Aboriginal women; Gynecologic Oncology
Self-directed multimedia process for delivering participant informed consent; BMJ Open
Smallpox and Vaccination in Tasmania; Tasmanian Historical Research Association Papers and Proceedings
The British Medical Association in Tasmania and the Hospital Crisis; Tasmanian Historical Research Association Papers and Proceedings
The complex genetics of gait speed: genome-wide meta-analysis approach; Aging
The History of Bioethics: implications for current debates in health research; Perspectives in Biology and Medicine
Understanding public reactions to commercialization of biobanks and use of biobank resources; Social Science & Medicine

Research Projects

A vulvar cancer cluster caused by genetic susceptibility: investigating the genetic mechanism; National Health & Medical Research Council (NHMRC)
An app platform for informed consent: making multimedia content accessible; Menzies Institute for Medical Research (MIMR)
Enhancing Early Detection of Cognitive Impairment in the Criminal Justice System; University of Tasmania (UTAS)
Improving informed consent in research to protect participants; University of Tasmania (UTAS)
Returning raw genomic data: patient autonomy or legal minefield?; Medical Research Future Fund (MRFF)
Assessment of Commonwealth, State and Territory legislation and regulations as it applies to the collection and use of health-related genomics information in the clinical and research setting

Research Candidate Supervision