Web Access Research Portal

Researcher: Roydhouse, J (Dr Jessica Roydhouse)

Fields of Research

Health services and systems
Oncology and carcinogenesis
Nursing
Health promotion
Other biomedical and clinical sciences
Biostatistics
Primary health care
Solid tumours
Cancer therapy (excl. chemotherapy and radiation therapy)
Haematological tumours
Multimorbidity
Health care administration
Respiratory diseases
Health and community services
Other health sciences
Mental health services
Implementation science and evaluation
Law reform
Health surveillance
Health policy
Digital health
Palliative care
Bioethics
Cancer genetics
Injury prevention
Occupational and workplace health and safety
Rural and remote health services
Social psychology
Cancer diagnosis
Epidemiology
Health economics
Small business organisation and management
Public health
Maritime transportation and freight services
Genomics
Gender psychology
Neurology and neuromuscular diseases
Psychology of religion

Research Objectives

Evaluation of health outcomes
Evaluation of health and support services
Behaviour and health
Clinical health
Nursing
Public health (excl. specific population health)
Provision of health and support services
Health education and promotion
Neonatal and child health
Health inequalities
Injury prevention and control
Other health
Law reform
Health system performance (incl. effectiveness of programs)
Prevention of human diseases and conditions
Health status (incl. wellbeing)
Diagnosis of human diseases and conditions
Adolescent health
Coastal sea freight transport
Expanding knowledge in the biomedical and clinical sciences
Management
Allied health therapies (excl. mental health services)
Mental health
Health policy evaluation
Specific population health (excl. Indigenous health)
Religion and society
Treatment of human diseases and conditions
Men's health
Preventive medicine

Career Best Publications

Research Publications

A description of the nutritional status and quality of life of Australian gynaecological cancer patients over time; European Journal of Oncology Nursing
A snapshot of general practitioner attitudes, levels of confidence and self-reported paediatric asthma management practice; Australian Journal of Primary Health
Advancing the educational and career pathway for clinical trials nurses; Journal of Continuing Education in Nursing
An exploratory analysis of active and low energy behaviour in Australian adolescents; Australian Journal of Primary Health
An exploratory analysis of the “Was it worth it?” questionnaire as a novel metric to capture patient perceptions of cancer treatment; Value in Health
Analyzing patient-reported outcome data when completion differs between arms in open-label trials: an application of principal stratification; Pharmacoepidemiology and Drug Safety
Assessment of patient perception of treatment assignment and patient-reported outcomes in a cannabis use disorder trial; American Journal of Drug and Alcohol Abuse
Association of patient-reported physician awareness of complementary medicine, medical care experience and care quality; Journal of Patient Experience
Asthma education in primary healthcare settings; Current Opinion in Pediatrics
Becoming Australian? Two different approaches to health care reform in the United States; Australian Health Review
Blinding and patient-reported outcome completion rates in US Food and Drug Administration cancer trial submissions, 2007-2017; Journal of the National Cancer Institute
Chinese-Australian women's knowledge, facilitators and barriers related to cervical cancer screening: a qualitative study; Journal of Immigrant and Minority Health
Co-designing a Multimorbidity Research Program for Tasmania
Concomitant botanical medicine use among patients participating in commercial prostate cancer trials; Complementary Therapies in Medicine
Differences between proxy and patient assessments of cancer care experiences and quality ratings; Health Services Research
Does knowledge of treatment assignment affect patient report of symptoms, function, and health status? An evaluation using multiple myeloma trials; Value in Health
Does resilience mediate carer distress after head and neck cancer?; Cancer Nursing
East meets West: a brief report of a culturally sensitive breast health education program for Chinese-Australian women; Journal of Cancer Education
Ethical considerations for the inclusion of patient-reported outcomes in clinical research: The PRO ethics guidelines; JAMA - Journal of the American Medical Association
Exploration of baseline patient-reported side effect bother from cancer therapy; Clinical Trials
Feasibility of a peer-led, school-based asthma education programme for adolescents in Jordan; Eastern Mediterranean Health Journal
Feasibility study of a communication and education asthma intervention for general practitioners in Australia; Australian Journal of Primary Health
Global variation in Opioid use in prostate cancer trials; JAMA Oncology
Hospital churn and casemix instability: implications for planning and educating the nursing workforce; Australian Health Review
How useful are Digital Health terms for outcomes research? Results of a scoping review of systematic reviews; Value in Health
Incorporating information from proxies for patient-centered outcomes in adult and pediatric oncology settings; Journal of Clinical Oncology
Investigating potential bias in patient-reported outcomes in open-label cancer trials; JAMA Oncology
Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection; Nature Communications
Knowledge and skills of cancer clinical trials nurses in Australia; Journal of Advanced Nursing
Medical students go back to school: the Triple A journey; Australian Family Physician
Methods to Evaluate and Correct for Bias in Patient-Reported Outcomes in Clinical Trials: A Discussion; JSM 2020
Missing data in palliative care research: estimands and estimators; BMJ Supportive & Palliative Care
Nurse-led supportive care management: a 6-month review of the role of a nurse practitioner in a chemotherapy unit; Australian Health Review
Patient and proxy reports regarding the experience of treatment decision-making in cancer care; Psycho-Oncology
Patient reported outcomes in anti-PD-1/PD-L1 inhibitor immunotherapy registration trials: FDA analysis of data submitted and future directions; Clinical Trials
PROactive—Linking design, analysis, and interpretation of patient-reported outcomes in clinical trials
Propensity scores for proxy reports of care experience and quality: are they useful?; Health Services and Outcomes Research Methodology
Proxy and patient reports of health-related quality of life in a national cancer survey; Health and Quality of Life Outcomes
Proxy Measures for Quality of Life in Cancer; Handbook of Quality of Life in Cancer
Psychosocial impact of cutaneous toxicities associated with epidermal growth factor receptor-inhibitor treatment; Clinical Journal of Oncology Nursing
Recruiting and retaining general practitioners to a primary care asthma-intervention study in Australia; Australian Journal of Primary Health
Sexual Orientation and Gender Identity Conversion Practices
Strategies for piloting a breast health promotion program in the Chinese-Australian population; Preventing Chronic Disease
Systematic review of caregiver responses for patient health-related quality of life in adult cancer care; Quality of Life Research
The association of proxy care engagement with proxy reports of patient experience and quality of life; Health Services Research
The effect of a “class smoke free pledge” on breath carbon monoxide in Arabic male adolescents; Nicotine & Tobacco Research
The effect of cancer stage and treatment modality on quality of life in oropharyngeal cancer; Laryngoscope
The effectiveness of glucose in reducing needle-related procedural pain in infants; Journal of Pediatric Nursing
The estimand framework and its application in substance use disorder clinical trials: a case study; American Journal of Drug and Alcohol Abuse
The information needs of patients with head and neck cancer and their caregivers: a short report of instrument development and testing; Applied Nursing Research
The many tentacles of Estimands in HEOR-From PROs to RWD; Value & Outcomes Spotlight
The use of proxies and proxy-reported measures: a report of the international society for quality of life research (ISOQOL) proxy task force; Quality of Life Research
Time to deterioration of symptoms or function using patient-reported outcomes in cancer trials; The Lancet Oncology
Trials with patient-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR); Quality of Life Research
Trials with proxy-reported outcomes registered on the Australian New Zealand Clinical Trials Registry (ANZCTR); Quality of Life Research
Unmet psychological and practical needs of patients with cancer in rural and remote areas of Western Australia; Rural and Remote Health
US Food and Drug Administration review of statistical analysis of patient-reported outcomes in lung cancer clinical trials approved between January, 2008, and December, 2017; Lancet Oncology
What should research focus on for people living with two or more long-term health conditions? A summary of the research report: Co-designing a multimorbidity research program for Tasmania

Research Projects

Evaluation of a global item for side effect bother in cancer trials; Food and Drug Administration (FDA) (FDA)
Patient and carer experiences with relapsed/refractory multiple myeloma and myelodysplastic syndrome; Royal Hobart Hospital Research Foundation (RHHRF)
Precision Medicine for Men with Prostate Cancer; Royal Hobart Hospital Research Foundation (RHHRF)
Real-world outcomes and toxicities for patients with non-small cell lung cancer receiving immunotherapy; Royal Hobart Hospital Research Foundation (RHHRF)
Screening for liver cancer in primary care: a systematic review of the evidence; Primary Care Collaborative Cancer Clinical Trials Group (PC4)
Select Foundation Senior Research Fellowship - Health Services; The Select Foundation (SelF)
Development of PRO resources and training
PRO Resources and Tools for Trials

Research Candidate Supervision